Get excited for May Long Weekend! The parade is back, and we hope you're able to join us once again this year in making it even bigger and better than…
Cookie Run (Run, Walk, Roll for Costello)
FACT of the Week 4:
"Children with Costello Syndrome have “global developmental delays” and intellectual disabilities that will compromise their ability to live independently, but they generally eventually reach all the childhood milestones. Thank goodness for their “warm, social personalities” often described in publications!"
-From the Costello Syndrome Family Network, online @ www.costellosyndromeusa.org
-From the Costello Syndrome Family Network, online @ www.costellosyndromeusa.org
FACT of the Week 3:
"All our children will be short, this is something that all RASopathies share (Costello Syndrome falls under this "umbrella" of genetic disorders). Growth hormone treatment is controversial to increase height alone because of the risk of cancer and HCM (hypertrophic cardiomyopathy), both which develop because the cells are instructed to grow beyond what’s healthy."
-From the Costello Syndrome Family Network, online @ www.costellosyndromeusa.org
-From the Costello Syndrome Family Network, online @ www.costellosyndromeusa.org
FACT of the Week 2:
"Problems with the heart are common. About 85% of those with CS have at least one issue with their heart."
-From the Costello Syndrome Family Network, online @ www.costellosyndromeusa.org
FACT of the Week One:
"Costello syndrome (CS) is the rarest of the RASopathies, affecting about 300 - 1000 people
worldwide. Unlike the other RASopathies, the only mutation that causes Costello syndrome is HRAS."
-From the Costello Syndrome Family Network, online @ www.costellosyndromeusa.org
